fibromyalgia

All posts tagged fibromyalgia

The REAL Medi-scare You Should Be Worried About

Published May 30, 2011 by glaumland

This is something I’ve been watching and worrying about for a while and I’m glad to see that this topic is finally getting some press. No, it’s not the Mediscare that the Democrats are talking about, but it is something to be concerned about. Very concerned.

http://hosted.ap.org/dynamic/stories/U/US_MED_HEALTHBEAT_DRUG_SHORTAGES?SITE=AP&SECTION=HOME&TEMPLATE=DEFAULT&CTIME=2011-05-30-07-41-58

There are a myriad of reasons that this would occur, some will blame the economy, red-tape, legislation. In fact, I think that those reasons have added to the medicine shortage. But from my point of view, the biggest problem is that larger drug companies are buying out the smaller companies. The supply of cheaper American-made generics is losing out to the production of brand-name heavily promoted drugs.

Two examples…

First example? Plain old eye lubrication ointment. Nothing special about this stuff – it’s petrolatum that is ophthalmic grade. But in the last six months the price of a little tube had quadrupled. But you can still get it, if it isn’t on backorder. And that’s just the stuff without any medication in it.

The next example – injectable medication for treatment of heartworm positive dogs. The old stuff was economical and effective (an injectable arsenical compound), although treatment could always be dangerous and deadly (you know, the Old Lace kind of poison). But I can say I never lost a patient, thanks to zealous attention to changes in patients’ medical conditions and some luck. Unfortunately, this drug was made by a small company that got bought out by a big drug company (one of those Pharma’s) that had produced a new (and only FDA approved) heartworm treatment. Here’s their MO: buy up the little company, have the EPA declare the factory a hazardous waste site due to the presence of arsenic, and start selling the heck out of your new drug. The problem? There isn’t enough of the new drug manufactured to treat all of the heartworm positive dogs, and you can only get their drug if you can pass their compassionate care guidelines.

Less available and more expensive, and sounds like a giant conflict of interest. I do think that drug companies do need to have a profitable business plan and reap the benefits of years and $$$ put into research (and we only see the successful drugs). But new business plan of getting rid of the small competition is going to bite us all in the rear.

All of those $4 drugs from Walmart are available because Walmart purchases on such a large scale and because they are willing to take a loss to get you inside the store. Good for them, good for you as an individual, but not so good for the drug industry. No Profits + No Protection = No Products.

Many of the generics now are being purchased from overseas suppliers, especially in India and Asia. Although this is good for their economies and global trade, consumer beware! Many of these medications are not what they seem – they can have different quantities of medicine or look different from how they are normally distributed – possibly not being as effective as usual. But worst of all, they can be adulterated, meaning they can have toxins or other compounds present in them that may actually be detrimental to the patient taking the medicine.

With my fibromyalgia I’m on a lot of meds, and I’ve noticed that certain meds seem to act different from bottle to bottle. Is is me? Or is it the meds? I’m starting to wonder…

Don’t be afraid to question your doctor and your pharmacist to make sure you are getting good quality medicines, preferably made in the USA. Your health may depend upon it.

Don’t be afraid to bring this issue up to your representatives…your future health may depend on it. Don’t take my word for it, do your own research.

Until next time…

 

My Fibromyalgia Update

Published November 23, 2009 by glaumland

Fibromyalgia has been, at least for me, a constant balancing act of trying to use the right meds at the right time and balance that with activity and rest. Although I may find a regimen that works great one day, there is no guarantee that it will continue to work another day.

So I’ve been playing with sleep aids, which seems to be where most of my troubles lie. I don’t remember when I’ve had a good night sleep and woke up refreshed (actually, I do remember one day in February of 2007). How sad.

And lately I’ve been having lots of nights with active dreaming again. Makes me tired just to think of it. I’ve had lots of dreams about houses; so big and complicated you need GPS just to get around.

One of my really good friends is a nurse and also very in to natural medicine. She works the late shift so sleeping cycles can be very challenging for her, too. Lately she’s tried L-tryptophan, the amino acid that’s found in turkey that makes everyone sleeping on Thanksgiving afternoon. She said it has really worked great for her.

So I decided to give it a try. Wow! I’ve actually gotten 2 good nights sleep (not to say they were dreamless) but I wasn’t exhausted when I woke up. I actually feel good! Amazing!!!! I forgot how much energy I could have when I feel refreshed!!!! It’s definitely an exclamation point day!!!! I’ve already offered up thanks to God; now I’ve got to call my friend. She’ll be so pleased for me.

I hope this continues for a long time, but I’ll enjoy it for however long it lasts. I’m off to conquer the world!!!

Until next time…

If Wishes Were Hotdogs

Published November 19, 2009 by glaumland

Wow, it’s been forever since I blogged. It hasn’t been because I don’t have anything to say, it’s just been because…well, life has been wacky lately.

I’m finally off the meds that turned me into an anti-social zombie. So now I’m spending lots of time trying to get my life back in some sort of order. It’s been challenging, but it’s much better than the alternative. I feel like a real person again.

I was feeling sorry for the dogs, since the time change has meant that we don’t spend as much time outside with them. So Santa came early and brought them a couple Kongs (hard rubber toys with room inside for treats).

They were so happy, because tonight I filled them with hotdogs! The pups didn’t know what to do…they kept running back and forth to make certain the other Kong didn’t have more goodies than theirs, then ran back to try to figure out how to lick a hotdog out of the center.

Ha, ha, ha…mind games with puppy dogs – I can definitely win that battle! (Probably)

Until next time…

I’m Not Crazy…I’m just Married!

Published October 12, 2009 by glaumland

Or maybe I am crazy?

One of my best friends came over yesterday to help me clean the house. (I had done some vetting for her when one of her dogs got attacked by the other. I told her I hope they keep getting into fights. Ha!) Boxes and laundry everywhere. It was quite a job.

Now let me back up a moment…I was on some medication this summer for my fibromyalgia that left me with some unwanted side-effects: short-term memory loss, trouble concentrating, and anti-social behavior. Of course, it took some time for me to realize that I was experiencing these effects, and not just getting old and cranky.

So, this summer was difficult, from the point of trying to stay on top of things and getting things done. Oh, yeah…one of the side-effects was sleeping all of the time! Anyway, once I figured out I was having these issues (and the FM wasn’t any better) I contacted my doctor to work on a new med regime. This one seems to be going better personality/mental wise, although the pain at times is worse.

Anyway, back to the point about being crazy. As we were going through boxes, I found a box of stuff that Dear Hubby must have taken off of my desk in an effort to be helpful. There was some of the stuff that I couldn’t find this summer that I spent hours looking for, thinking that in some crazy hallucination I must have done something with it. It wasn’t me! Thank, goodness.

However, now I had a box full of stuff that had to be dealt with. So I spent most of today getting on top of that box and I’m glad to say it is nearly done. I feel almost like a sane person again.

Now, to convince Dear Hubby not to do me any favors for a while, or at least leave the desk alone. Getting THAT done may drive me crazy.

Until next time…

The Joy Of Milking

Published July 16, 2009 by glaumland

OK, I have to admit that I was not looking forward to doing the milking this morning. It really isn’t that much of a chore, because we only have the one goat; but this morning, I just wasn’t in the mood.

The whole milk goat experiment came about because Dear Hubby wanted milk cows. I have been around long enough to know how much work that is. I PUT MY FOOT DOWN! There was no way I was going to be a dairy farmer, even on a small scale. (Don’t forget, you don’t just need a cow, there has to be some bovine sex involved once a year, plus the fun of raising a bottle calf…no way, no how!)

However, Dear Hubby finally wore me down. We were spending so much money on milk, now that kids are getting bigger, and the grocery budget definitely was taking a hit. And I hate doing dishes. We haven’t had a dishwasher since 94. So Hubby told me that if I let him get a dairy goat, he’d buy me a dishwasher. Wow, a fair trade-off, at least  until I realized he wanted the dishwasher to sterilize milk bottles. Humph!

Needless to say, I broke down on the goats. One goat was lonely, so we got another goat. Then finding a buck to breed to can be tough, so now we have another goat. I’m beginning to notice a pattern here.

OK, back to my original thought…I didn’t feel like milking today.

But the cats love milking time and think that the goat is the most wonderful person on the planet (next to me, of course). So it is always fun to see them come running when they hear me with the feed and milking equipment. Baron Von Broccoli was so excited this morning he actually followed me to the goat pen. It was funny to walk back to the house – me in the lead, followed by the goat, followed by the cat. Quite a parade!

So we get settled in for the milking. I’ve been having some trouble this year with my left hand. Don’t know if it is the fibromyalgia or what. Anyway, I’ve been frustrated (and so has the goat) by my inability to get a good stream and rhythm going. So this morning I tried switching hands (which isn’t just a matter of switching sides) and viola! It worked. I’ll try it again tonight to see if it was just a fluke.

Finally, milking is all done, and it’s time for some lovey-dovey time with the goat. This is a nice, quiet time for petting the goat and telling her how wonderful she is. Unfortunately, she landed a few goat kisses on my face, which in and of themselves aren’t so bad. But goats like poison ivy, and I’m highly allergic to poison ivy, so I may be walking around with a disfigured face for a while. Oh well…it was worth it.

Until next time…

Can’t Sleep ‘Cause My Toes Keep Tappin’

Published June 26, 2009 by glaumland

Thanks Fibromyalgia! Thanks Restless Leg Syndrome! Just what I was looking forward to tonight, missing a nights sleep. But guess that means I’ll be sleeping all day tomorrow. And not getting done what I had planned. Grrrr…

On the good side, I’m sitting here with my cup of chamomile tea in hand and doing some blogging.

And speaking of FM and RLS, this Obamacare stuff has me VERY worried. I’m not sure how I would do, because I’m not rich, so I really depend on my healthcare to keep me on my feet. Especially since my symptoms continue to evolve regularly. Plus since I’m getting to mid-century, would I be eligible to receive any help? Don’t know.

That’s why I am NOT in favor of Obamacare…just too many unknowns that the Dems are trying to shove down our throats once again. And it seems like Obama doesn’t even know the answers, calling it an evolving process or something.

My thought is, if the Dems want to do something, take a couple billion (yikes!) and fix the areas of healthcare where government is already involved: Medicare and the Veterans Administration. Once they’ve proven they can fix what’s broken in their own home, maybe then I’d let them work on what isn’t broken in mine.

Until next time…

Finally Feeling Alot Better, For Now

Published May 9, 2009 by glaumland

Well, I haven’t been feeling very well lately. It actually crept up so slowly this spring I didn’t realize it until in was full blown yucky. Just another aspect of fibromyalgia that I’ll have to note.

The problem started (I guess) when my sleep aid quite working and I was spending all night in an active dream mode. And so I would wake up so tired and sore in the morning. My tender points (areas that tend to get sore and stay that way for a long time) were painful. I wasn’t getting any relief from acetominophen and tramadol, so I cheated and added in ibuprofen and naproxen. And that wasn’t good for my intestines – thanks to the Crohns. GRRR.

Finally my doctor (who is about at his wit’s end) prescribed another sleeping aid – trazodone. Unfortunately, this didn’t work either. I was getting so frustrated and cranky. And it wasn’t just the muscle and joint pain that was back, but the irritated bladder, intestinal pain, stress headaches, and visual problems. Not only didn’t I feel at all good, I was missing out on so much stuff.

So late one night I did some research and found that some FM’ers were using trazodone with Lunesta (which I had used successfully for about 2 years until last summer). So the next night I tried the combo, and got some good sleep, but still some active dreaming. The Flexeril just wasn’t cutting the mustard. So I did some more research…

Luckily, I had some Skelaxin on hand from last fall. It didn’t do a darn thing for me then, but with the Lunesta/trazodone combo it has worked really well. Thank goodness. I was actually able to go work-out one day this week. I’m still not as well as late last fall, but I’m grateful for having better days.

So I’ll keep up with this regimen, but also keep my eye on the internet, because I have a feeling that I’ll be playing with meds again.

Until next time…